Only active CMTA Branch Leader in Canada based out of Edmonton, AB

Victoria Berezovich is a passionate advocate and speaker within the Charcot Marie Tooth (CMT) disease community, dedicated to raising awareness, providing support, and fostering understanding of this rare neurological condition. Diagnosed with CMT4C over 10 years ago, Victoria has firsthand experience navigating the challenges and triumphs associated with the condition, offering invaluable insights and perspectives to audiences worldwide. Victoria not only navigates life with CMT but also has navigated the medical system through various spinal fusion surgeries, brain aneurysm clipping and the discrimination she faced just to get genetic confirmation of her CMT diagnosis. Victoria delivered the keynote address at the 2023 CMTA Patient & Research Summit in Boston, MA. And also has spoken to several CMTA communities in the United States, Hawaiian Islands and internationally to CMT4C communities abroad. Victoria is a cast member of the CBC docu-series Push, a CMT4C Patient in Research Task Force Steering Committee member and has appeared in several print campaigns, published magazines and Saskatchewan Fashion Week as a model representing CMT.