Advocate
My name is Chelsea and have Charcot-Marie-Tooth (CMT) disease. While there are plenty of defining attributes about me, CMT is one of the largest; it affects me physically and mentally, positively and negatively. After a decade of surgeries and reaching a low point in my life, I turned to sharing my story, empowering others, and advocating for disabilities.
When I'm not fighting for treatments for CMT, I am generally outdoors with my husband, daughter, and 2 dogs. I am an adventure junkie and travel enthusiast. And when I'm indoors, (usually resting from my condition) I'm a forensic sciences and horror movie fanatic.
CMT Charcot-Marie-Tooth disease is a rare group of genetic disorders that affect the muscles in the arms and legs. While this a non fatal condition at this point in time surgery is the only proven treatment to improve the qua...